New Alzheimer's Support Group

By the year 2050, two-thirds of people over age 85 will have Alzheimer’s or related dementia.  Currently, more than 5 million people* in the US are living with Alzheimer’s disease. Someone in the US develops Alzheimer’s approximately every 67 seconds.* Alzheimer’s disease leads to memory loss as well as changes in thinking and behavior.  Research suggest that teaching caregivers more about their role helps both the caregiver and the person with dementia to live healthier happier lives.

In honor of Alzheimer’s and Caregivers awareness month this November, a new support group for caregivers of people with dementia will start Nov. 21 at 11:30am.  Caregivers will meet monthly to learn new skills, focus on self-care, and share coping techniques with each other.  Speakers with expertise in dementia care will come to the monthly meetings to share tips.  In November we’ll learn about non-medicine ways to prevent and treat dementia.  On December 17 Kathy Birkett, a local dietitian with specialty in senior care, will talk to us about how diet can help.   Participants are encouraged to bring a brown bag lunch and drink along to the group each month.

On November 21 at 11:30 (during the Alz. support group) Clemson University students, under the direction of Dr. Cheryl Dye, will provide activities for people with early or mid-stage dementia.  Board games, drawing, and music will be used to stimulate brain function and improve mood.  Room for 10 participants is available.  Email  tcheryl@clemson.edu to reserve a spot in the care recipient group.

Both groups will meet in neighboring conference rooms at GHS Oconee Memorial Hospital.  Participants for both groups should park in the front parking lot and enter together through the tower front door where people at the information desk can direct participants to the 2nd floor conference rooms.  No pre-registration required for the Alzheimer’s support group.  For questions about this new group please contact Eunice Lehmacher, LISW-CP at 864-643-8449 or elehmacher@gmail.com.  Eunice is a local counselor and geriatric care manager in Seneca and a certified dementia specialist.  Dr. Cheryl Dye is a professor in the Department of Public Health Sciences at Clemson University and the Director of the Institute for Engaged Aging.

For information on other Alzheimer’s support groups in the area contact the leader listed below:  In Seneca:  2nd Monday of each month 7pm, Jane Thomas (864-882-1202)

Clemson: 1st Wednesday of each month 2pm, Gail Marion (864-356-1174)

Easley: 1st Thursday of each month 7pm, Jim Vaughn (864-414-2378).

For more information on Alzheimer’s and for support call  the Alzheimer’s Association at 1-800-272-3900 or see www.alz.org.

Participants in an Alzheimer’s support group who would like to have a caregiver stay with their loved one when they attend the support group can call 800-272-3900 at least two weeks in advance to arrange for an free in-home caregiver for their loved one with dementia.

*data from Alz.org

The Ten Absolutes for Caregivers

Jo Huey, a nurse, wrote these 10 absolutes for caregivers taking care of someone with dementia:

1.   Never argue, instead agree.
2.   Never reason, instead divert.
3.   Never shame, instead distract.
4.   Never lecture, instead reassure.
5.   Never “remember,” instead reminisce.
6.   Never say “I told you,” instead repeat.
7.   Never say “you can’t,” instead say “do what you can.”
8.   Never command or demand, instead ask or model.
9.    Never condescend, instead encourage or praise.
10. Never force, instead reinforce. 

Caregivers find it hard to stop using reason with their loved one, especially if the person with dementia was an engineer, lawyer, planner or was always very reasonable before dementia.  But once the disease starts, no amount of reasoning or logical discussions will convince them that their version of reality is not real.  In fact, being reasonable, a skill that works well in most other situations, can actually escalate arguements when talking to someone with dementia.  Just like we often can't reason with a toddler, we also can't reason with someone who is now losing skills they learned as a child.  (Note that we unlearn things in the same order we learned them before as a child).

Here's a place where Lily Tomlin can help us:  "Reality is the leading cause of stress of those in touch with it." 

Allow your care reciever to have their own reality.  Let them enjoy it, and don't talk them out of it.  Your job as the caregiver is to eliminate conflict and provide saftey and purpose in life when you can.  And of course, your job is to take care of yourself.  Cut down the arguements, and enjoy the moments that you are given with your loved one.

Consider posting Huey's 10 Abolutes in a place you see daily to remind you.

The Aging of America

In 2056, for the first time in US history, the population of people older than 65 will outnumber younger people according to the US Census bureau.  The Census bureau also tells us that baby boomers are living longer than their parents did even though they tend to be less healthy than their parents were at the same age.  Advances in medicine and medical technology are allowing people to live longer, even if they have poor health habits.

What changes will need to happen as a higher percentage of our population is older?  Time will tell.  But mostly likely we'll need to rely on each other more.  Our health care system will need to focus more on staying fit and healthy and less on curing illnesses.  And each of us will need to care for older neighbors, family members, and friends.  Probably a higher percentage of the population will be employed in the elder care and health care fields.  And we may all work well past the age of 60.

As changes come to our society each of us needs to make sure we are ready for the future.  Staying physically, socially, and mentally active will help each of us as our bodies grow older.  No matter what your age now, consider ways that you can become more engaged in your community, keep your body fit, and use your brain more.  Consider adding the following habits to your life:

*At least once a week call or visit a friend.
*Exercise daily, sometimes aerobic, sometimes stretching.  If you don't have time for a whole work-out, add a longer walk to the car when you park at the office or store or take the steps instead of the elevator.
*Look for ways to learn daily.  Make a list of things you want to learn on your computer or in your journal.  Check this list at least once a year to notice what you've learned and pat yourself on the back for keeping an active brain.
*Learn habits that help you relax and feel good.  Include leisure in your weekly and daily routine.
*Consider your next doctor visit as a time to learn about yourself and your health.  After your check-up resolve to try new ideas that you learned from the doctor or nurse to improve your health.  Enlist a friend to encourage you to keep your goal by telling her/him of your new resolution.
*Notice (but don't condemn yourself for) your bad health habits and make small changes to be more healthy.  For example, if you put three spoons of sugar in your tea, try to cut back to 2 spoons over the course of one week.  If you walk one mile slowly, pick up the pace once a week or add a bit of length.  Small changes makes big differences over time.
*Learn about organizations that help others and consider volunteering.
*Talk with your family members and friends about how you want to be cared for when your are older.  Get your will ready and prepare ideas for your family to commemorate your death once you have pass on.

We'll all need to work together as our society ages.  Please add your comments on how we can all prepare in the comments below.

Recent research on improving sleep

Summarized below are three new studies that help us understand more about sleep.  Summaries below are draw from WebMed (www.webmd.com) research summaries and articles on sleep written by Dr. Micheal Breus, PhD, ABSM.

1.  The National Science foundation interviewed 1000 adults (ages 23-60) to determine the effects of exercise on sleep.  Respondents reported their physical activity for the week (vigorous, moderate, light, and no activity).  All respondents reported the same amount of sleep, but the more people exercised in the day time, the higher the quality of sleep (i.e. they felt more rested and refreshed when waking).  61% of the non-exercisers reported bad sleep (e.g. difficulty falling and staying asleep, difficulty falling back asleep, sleeping too little), and were more likely to report feeling sleepy during the day.  But perhaps most significant is that even those who only reported light exercise (e.g. 10 minute walk a day), reported better sleep than those who did no exercise.  Participants who exercised more reported improved sleep regardless of when during they day they exercised.

2.  A new study conducted by the University of California Berkeley suggests poor sleep may contribute to the lack of appreciation in couples.  Researchers studied 60 heterosexual couples between ages 18 and 56, asking them to record amount of sleep and their feelings of gratitude.  Results suggest that people tend to feel less appreciated by their partners if they slept poorly. In fact, when just one member of the couple slept poorly, both partners are negatively effected emotionally and have a lower level of appreciation felt in the relationship.  This may explain why more couples are sleeping separately (25% and rising).  Poor or insufficient sleep leads to crankiness and less ability to adapt to changes.  So it's no wonder that we are less appreciative when we have slept poorly.

3.  Modest sleep improvement appears to increase tolerance for pain.  Researchers at the North Shore-Long Island Jewish Sleep Disorders Center extended the sleep of half the participants (ages 21-35) to 10 hours a night and then tested both groups for pain tolerance (how long it took them to remove hands from a heat source).  The extended sleep group had a 25% increase in pain tolerance, the equivalent of taking a pain killer.  Findings are found in the December 2012 issue of Sleep.  Although this small study cannot conclude that increased sleep causes higher pain tolerance, it does suggest that those 
expecting to have surgery or suffering from chronic pain would benefit from increased sleep.


So what can we conclude?

1.  Arrange your schedule so that you can get 7-10 hours of sleep each night.
2.  If you, your partner, boss, or best friend is experiencing sleep problems, get or encourage them to get some help improving their sleep habits.
3.  Exercise everyday, even on busy days.
4.  If you're experiencing chronic pain, consider other causes of pain beyond the initial diagnosis such as sleeping more.

Need help with sleeping better.  See the last blog post (from May 8, 2013, below).